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Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - Butterfly Children
Description: A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB ...
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Language: English
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The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and ...
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Information, mailing list, pictures, and help for new parents.
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3.0 / 5.0, Language: English
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.
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3.0 / 5.0, Language: English
Features organization background, information about the disorder, fundraising and research details, and news.
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3.0 / 5.0, Language: English
The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments ...
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3.0 / 5.0, Language: English
Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...
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3.0 / 5.0, Language: English
A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to ...
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3.0 / 5.0, Language: English
Free patterns including hats, mittens and ear mitts for all ages. Also baby patterns: layettets, hats and socks.
Site rating:
3.0 / 5.0, Language: English